Comments on: Hamada Update.

By: auto mechanic work

auto mechanic work — Tue, 14 Dec 2010 19:37:18 +0000

I’ve recently started a blog, the information you provide on this site has helped me tremendously. Thank you for all of your time & work.

By: After 25+ Back Pain Surgeries (Patient lost count) Donald Found the Right Surgeon | LOWER BACK AND HIP PAIN

Thu, 25 Mar 2010 09:12:07 +0000

[...] Hamada Update. — susiehemingway.com [...]

By: Lori Puente

Lori Puente — Mon, 22 Mar 2010 02:54:16 +0000

Hey Susie! So glad that Hamada is holding up despite the cold! I hate it when Dave gets one, but am always heartened that he seems to be able to fight it. Everything is doubled edged with this MM! Poem is terrific and so true!

Love, Lori

By: Teresa Krone

Teresa Krone — Sun, 21 Mar 2010 23:07:57 +0000

So well said as usual, Susie. I got several positive emails from my ACOR post, and if I get some negatives, who cares?

By: Dianne

Dianne — Sun, 21 Mar 2010 21:38:48 +0000

Dearest Susie,
You know how much your poems mean to me … they say so beautifully what I am feeling as we travel the MM caregiver road together. I’ve always referred to MM as the “beast” and I even have a picture of it in my minds-eye. While Vern was in remission, I sensed it laying in wait over in the corner, its nostrils flaring as it breathed in and out, just waiting for the opportunity to come roaring back into our lives … and that it did.
I keep both you and Hamada in my thoughts as you deal with this new treatment. Velcade has been good for Vern – at initial treatment and again at relapse – and I pray that it will bring Hamada to remission.
Love,
Dianne

By: Lora Conrad

Lora Conrad — Sun, 21 Mar 2010 21:24:24 +0000

Dear Susie,
This beautiful, heartfelt poem Words penned by you and words of wisdom from others are rich gifts from people who know and feel and care like all the rest of us. They inspire us, they motivate us, they give us pause and offer meditation – each is uniquely spun around your life so we can see how MM has affected and changed the way you live, think, work, play and love. And that’s how we learn to deal with this beast – and I call it that too. Anything that brutalizes our bones, organs and body the way this MM does, deserves the lowly title of beast!
Always wishing the very best to you and Hamada – I’m on your team – go, go, go!!

With Love,
Lora

By: BoogieBarb

BoogieBarb — Sun, 21 Mar 2010 21:17:21 +0000

I found your poem achingly beautiful, and I am sure that others will feel the same way. I think folks “get into trouble” when they post something controversial or pretend to be an authority or insult someone else. You’ve done none of this; indeed I imagine folks are printing out your poem so that they know that someone else understands their ordeal.

Take care,
BoogieBarb

By: Carol Yombik

Carol Yombik — Sun, 21 Mar 2010 19:55:43 +0000

Dear Susan, your poem moved me to tears. It is exactly how I feel about this beast that has taken over my life. I just want my life back. I hate being sick and feeling dependant on my loved ones. I hate hate hate this disease and it is a beast or worse! Carol from MI

By: Nancy French

Nancy French — Sun, 21 Mar 2010 19:40:16 +0000

Thank you so much for your beautiful post. I’m also a caregiver, and I feel exactly as you do. Yes, there are one or two valuable things we have gained from our experience, but by and large it has been awful. To enjoy pain is a mental aberration–one I don’t have!

Your poem is wonderful. As a former English teacher and a current word lover, I flinch when someone asks me to read a poem they’ve written, but yours truly meets the requirements!

Hope you have a good day with your husband and patient.

Sincerely yours,
Nancy French
Alberta Canada
caregiver to Robert

By: Frances & Richard in UK

Frances & Richard in UK — Sun, 21 Mar 2010 19:32:23 +0000

Agree with every word you say……….. I’m also a carer to my husband who has MM, and while I can acknowlwdge that being forced to think seriously about how to spend time, rather than just living, can be constructive it’s very hard to find any REAL positives in the MM experience. I’m prepared to bet that everyone on this list, if able to answer honestly, would prefer to have their preMM life back. I know we would.

Frances & Richard in UK

By: Sallie n. Fl

Sallie n. Fl — Sun, 21 Mar 2010 19:29:44 +0000

Susan, Thanks for sharing. It is so inspirational. I am also a writer, a poet and very spiritual my husband was dx Feb. 5, 2010. Thanks again, Sallie n. Fl