Comments on: It’s Strange How You Know! http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/ A Power Within Wed, 25 Aug 2010 03:59:58 -0700 http://wordpress.org/?v=2.8.4 hourly 1 By: Barry http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1157 Barry Thu, 03 Sep 2009 18:07:15 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1157 It is frightening the distortion of the reality about health care both in the UK and here in Canada that the American public is receiving. It is doubly frightening the news media permits special interest groups to paint such a false picture unchallenged.<br /><br />I am joining your story and Hamada's in mid stream, and I am sorry to hear his latest test results. He sounds like a marvelous man--with an amazing wife. It is frightening the distortion of the reality about health care both in the UK and here in Canada that the American public is receiving. It is doubly frightening the news media permits special interest groups to paint such a false picture unchallenged.

I am joining your story and Hamada's in mid stream, and I am sorry to hear his latest test results. He sounds like a marvelous man–with an amazing wife.

]]> By: Jean http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1142 Jean Sat, 22 Aug 2009 13:05:37 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1142 Adding my heartfelt support and good wishes for you both. Adding my heartfelt support and good wishes for you both.

]]> By: Ruth - What Now UK http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1141 Ruth - What Now UK Wed, 19 Aug 2009 08:58:37 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1141 Susie You are fighting so hard. Hamada wouldn't be alive today if it wasn't for you. Yet you find tranquility in your home and the small joys that come. <br /><br />Long may your happiness last.<br /><br />Ruth Susie You are fighting so hard. Hamada wouldn't be alive today if it wasn't for you. Yet you find tranquility in your home and the small joys that come.

Long may your happiness last.

Ruth

]]> By: Roobeedoo http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1140 Roobeedoo Tue, 18 Aug 2009 08:32:57 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1140 Dear Susie, I too have a waiting room situation to face today so I know exactly how you feel. I wish I understood the numbers better - but our doctors keep saying the numbers are not "the point", and that its his overall condition that matters. I wouldn't wish a major chemo episode on Hamada too soon - the more I read, the more I understand that this is viewed as the last resort by many doctors - our own included. Oh Susie, what can I say - good wishes to both of you, and just love each other as I know you do! Dear Susie, I too have a waiting room situation to face today so I know exactly how you feel. I wish I understood the numbers better – but our doctors keep saying the numbers are not "the point", and that its his overall condition that matters. I wouldn't wish a major chemo episode on Hamada too soon – the more I read, the more I understand that this is viewed as the last resort by many doctors – our own included. Oh Susie, what can I say – good wishes to both of you, and just love each other as I know you do!

]]> By: Sandy http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1138 Sandy Mon, 17 Aug 2009 05:17:08 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1138 You are both in my prayers and daily intentions for better days and I do so want the team to find the right combination for Hamada's improvement. I will keep on knowing the doctors are being divinely guided to achieve that goal! You are both in my prayers and daily intentions for better days and I do so want the team to find the right combination for Hamada's improvement. I will keep on knowing the doctors are being divinely guided to achieve that goal!

]]> By: Walt Trachim http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1136 Walt Trachim Sat, 15 Aug 2009 13:35:38 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1136 As worrisome as this is, I'm with everyone else - you know Hamada is receiving the best care possible. <br /><br />You and Hamada continue to be in my thoughts and prayers, Susie. And I'm with Karen - I wish there was more that I could offer than that... As worrisome as this is, I'm with everyone else – you know Hamada is receiving the best care possible.

You and Hamada continue to be in my thoughts and prayers, Susie. And I'm with Karen – I wish there was more that I could offer than that…

]]> By: Michael Morse http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1134 Michael Morse Fri, 14 Aug 2009 21:35:42 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1134 It is good to know everything that can be done is being done, or considered. I never doubted Hamada was getting the very best care the world has to offer, both at the doctors, and especially at home. It is good to know everything that can be done is being done, or considered. I never doubted Hamada was getting the very best care the world has to offer, both at the doctors, and especially at home.

]]> By: Lora Conrad http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1133 Lora Conrad Fri, 14 Aug 2009 21:26:44 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1133 Sigh....well, it's certainly not what we had hoped you would hear. Some of the numbers look okay though, so, that's good. I'm not an authority, so, I am not qualified to judge/comment on the m-spike other than I know that is high, but, there are other factors that need to be weighed with that to know if you need to be too concerned. I've heard of higher m-spikes, but, I don't know what the 20 would mean? As for the Revlimid - that was my first (and only) line of treatment. It is very powerful and tough for a lot of us to tolerate. It wouldn't hurt to ask your oncologist if Hamada could start at a lower dose (10mg or 15mg)and see how that works to reduce the m-spike rather than start at the higher 25mg which "wipes out" most of us with extreme fatigue - he doesn't need that in addition to his weakness from the blood counts. Just a thought. <br /><br />Lastly, as far as the health care you feel Hamada is receiving, it's good to have faith and confidence in your team. As long as you have that, it's more important than the news reports. Keeping you both in my prayers. Will be waiting with great anticipation for the next plan of action. From your friend across the pond - Lora Sigh….well, it's certainly not what we had hoped you would hear. Some of the numbers look okay though, so, that's good. I'm not an authority, so, I am not qualified to judge/comment on the m-spike other than I know that is high, but, there are other factors that need to be weighed with that to know if you need to be too concerned. I've heard of higher m-spikes, but, I don't know what the 20 would mean? As for the Revlimid – that was my first (and only) line of treatment. It is very powerful and tough for a lot of us to tolerate. It wouldn't hurt to ask your oncologist if Hamada could start at a lower dose (10mg or 15mg)and see how that works to reduce the m-spike rather than start at the higher 25mg which "wipes out" most of us with extreme fatigue – he doesn't need that in addition to his weakness from the blood counts. Just a thought.

Lastly, as far as the health care you feel Hamada is receiving, it's good to have faith and confidence in your team. As long as you have that, it's more important than the news reports. Keeping you both in my prayers. Will be waiting with great anticipation for the next plan of action. From your friend across the pond – Lora

]]> By: Karen Brook Westhaver http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/comment-page-1/#comment-1132 Karen Brook Westhaver Fri, 14 Aug 2009 16:04:22 +0000 http://www.susiehemingway.com/2009/08/14/its-strange-how-you-know/#comment-1132 I had been anxiously awaiting further info about H's visit. And I wish I could contribute something more than my ongoing care and concern for you both and my prayers. Hematology, nephrology, and oncology beyond the basics, are beyond my fund of information/skill sets. I am grateful Hamada has wonderful specialists with cutting edge information/abilities and all the available medications to help guide you both through all the best steps. Thank you, Susie, for your post and the most recent results. I, too, know that feeling when you *know* by the minuscule changes in tone of voice, in that "have a seat" and slight differences you perceive in the other staff around you. Keep up your courage and know that you both are wrapped in the love and prayers of many...including mine :-) I had been anxiously awaiting further info about H's visit. And I wish I could contribute something more than my ongoing care and concern for you both and my prayers. Hematology, nephrology, and oncology beyond the basics, are beyond my fund of information/skill sets. I am grateful Hamada has wonderful specialists with cutting edge information/abilities and all the available medications to help guide you both through all the best steps. Thank you, Susie, for your post and the most recent results. I, too, know that feeling when you *know* by the minuscule changes in tone of voice, in that "have a seat" and slight differences you perceive in the other staff around you. Keep up your courage and know that you both are wrapped in the love and prayers of many…including mine :-)

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